Here We Go Again

Today has been a crappy day. The past couple of days Johnny has had no energy, he's usually very alert and wanting to play but lately he's been super lethargic. His oxygen needs have slowly increased but in the past two days he's gone from 40% to 90% oxygen which is a big leap. After doing a blood test this afternoon they found that his carbon dioxide levels were at 98 when they should be at 60 or lower. They did a chest x-ray and his lungs are really hazy and they are worried that he is either going into heart failure or that he has an infection. The worst part is that since he's been having such trouble breathing and has dangerously high CO2 levels he had to be put back on the ventilator. :( We all hate the ventilator but we didn't really have a choice. They already started him on antibiotics just in case and now we're waiting for tests to come back see if it's an infection. We should also be meeting with cardiologists to discuss whether or not this is caused by heart problems and what they game plan should be. Every week I think "it can't get worse than this" and then it always does get worse. Sorry I'm such a bummer but my life isn't super fun right now. I hate seeing my son suffer. He really hates the ventilator and tries to pull it out. They have him pretty sedated. I hope and pray that this will pass soon and he can get off the breathing tube. I know that my little Johnny boy is in the Lord's hands and that he has angels surrounding him. I just need to trust completely in the Lord and have the courage to accept his will. I'm so grateful for the knowledge of the Gospel and forever families. I know everything will work out. I just need to be patient. Thank you all for your love, support and prayers in our behalf. We are so thankful for you.